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Venter's dismissal of the medical implications of genomics

By Biomedicine in museums

What’s interesting in the interview with Craig Venter in Der Spiegel last week is not, as most commentators suggest, that Venter stands out as a self-aggrandizing jerk. What’s really interesting is his pessimistic view on the medical implications of genomics and ‘personalised medicine’:

SPIEGEL: So the Human Genome Project has had very little medical benefits so far?
VENTER: Close to zero to put it precisely […] I was just in Stockholm for the 200th anniversary of the Karolinska Institute. The first presentation was about the many achievements the decoding of the genome has brought. Then I spoke and said that this century will be remembered for how little, and not how much, happened in this field.

SPIEGEL: Why is it taking so long for the results of genome research to be applied in medicine?
VENTER: Because we have, in truth, learned nothing from the genome other than probabilities. How does a 1 or 3 percent increased risk for something translate into the clinic? It is useless information.

SPIEGEL: [What about] the kind of personalized medicine that genetic researchers have always touted? Each person would get his or her own personal treatment that is tailored precisely to that person’s genetic make-up?
VENTER: That was another one of these silly naïve notions that was out there. It’s not, ‘Oh, we know your genome, we’re going to make this drug for you.’ That will never happen.

Reminds me that ‘personalised medicine’ is an excellent topic for a historical exhibition.

A kind of medical 'museum' I have quite mixed feelings about

By Biomedicine in museums

I’m thinking of the Corpus Museum between Amsterdam and Den Haag — a 100 feet high building designed as the contours of the human body.

The “museum” invites the visitors on a “journey through the human body” during which they can “see, feel and hear how the human body works and what roles healthy food, healthy life and plenty of exercise plays”.

Opened two years ago, this seems to be the most extreme example of medical edutainment I’ve heard about so far: 

Questions as ‘Why do I have to sleep?’, ‘what happens when I sneeze’, ‘how does my hair grow’ are answered in CORPUS by means of tangible, visible and audible conceptions during the ‘journey through the human body’. CORPUS uses the latest technology in the field of imagery, sound and 3D effects to present and explain all aspects of the medical aspects of the human body.

I’ve only read about it on their website, so maybe I’ll change my mind if I visit it IRL.

Anyone who has been there?

Thanks to Bertalan (ScienceRoll) for the tip and the pics!

Is slow attention possible on the web?

By Biomedicine in museums

I just read an interview with distinguished British art historian John Boardman made for CBS BNET a couple of years ago. Among other things, Boardman tells about his experience of once having attended one of classical archeologist John D. Beazley‘s (a specialist on Athenian vase painting) lectures:

By spending the entire hour analysing the painting of a single vase, he taught us how to look at an object properly.

There seems to be something lost when we put our artefact collections on the web — it makes slow attention more difficult.

Biography of a collection or a collector?

By Biomedicine in museums

Donna Bilak’s review of Frances Larson’s An Infinity of Things: How Sir Henry Wellcome Collected the World (Oxford UP, 2009) points to an interesting contradiction in Larson’s book — is it a biography of the collection or of the collector?

Larson’s explicit intent is to write “a biography of this gargantuan, amorphous, ethnographic collection”, but in practice , Bilak claims, the structure and content of the book puts Wellcome rather than his collection in the center.

Oxford University Press tries to solve the problem on the book’s website, when writing that “An Infinity of Things tells the story of the greatest private collection ever made, and the life of the man behind it”.

But can you have it both ways? Or do you, as Bilak, suggests, have to make a choice. Either the story of the collection or the story of the collector will have to frame the content and structure of the narrative.

The dangers of oversharing

By Biomedicine in museums

Jeffrey Rosen, a law professor at George Washington University, has written an excellent overview of the online privacy problem, titled “The web means the end of forgetting”, in last week’s NYT (a reminder that old media often still publish the best stuff).

Despite Rosen’s focus on the legal aspects of our eternal exposure on the web, the most interesting aspect of the article is his discussion about the emergence of new social norms regulating our online presence. He has actually “been at dinners recently where someone has requested, in all seriousness, ‘Please don’t tweet this’”.

There is something important about changing social norms going on here. The few times I’ve taken photos of participants in academic meetings and seminar for this blog, I’ve felt somewhat guilty of breaching their right to privacy. But do Facebookers feel the same way?

Ken Arnold visiting professor in medical science communication and museology at Medical Museion

By Biomedicine in museums

Today, Ken Arnold is starting his temporary appointment as Visiting Professor in Medical Science Communication and Museology at Medical Museion.

When he is not visiting Medical Museion, Ken Arnold heads the Public Programmes team at the Wellcome Trust, where his role is to creatively direct Wellcome Collection — a very successful public venue in London that seeks to explore the connections between medicine, art and life. It has received very positive press attention throughout the world, attracted over 300,000 visits per year since 2007, and has been nominated for the Museum of the Year and European Museum of the Year awards.

The Wellcome Collection has emerged as the culmination of 15 years of innovative public work at the Trust, where Ken Arnold has run a variety of arts and exhibitions activities, including a gallery at the Science Museum devoted to exploring medicine in context. He also co-ordinated the establishment of the Wellcome Trust’s arts funding initiatives, which support collaborative work between scientists and artists. He was also Chief Curator of the highly successful exhibition Medicine Man: the Forgotten Museum of Henry Wellcome shown at the British Museum in 2003.

Ken Arnold gained a B.A. in Natural Sciences at Cambridge University and a Ph.D. in the history of science from Princeton University, and worked in a variety of museums (national and local) on both sides of the Atlantic, before joining the Wellcome Trust in 1992. He regularly writes and lectures on the culture of museums past and present and on the contemporary relations between the arts and sciences.

Some of his articles in collected volumes are highly original contributions to the problem of how to use art in the presentation of medical science. Other articles have raised the problems of the relation between history of medicine and medical museums in new and fruitful ways. In the monograph Cabinets for the Curious: Looking Back at Early English Museums (2006), Arnold draws on the historical experiences of the classical 16th and 17th century curiosity cabinet as a resource for opening up a new field of discourse for contemporary museum innovation. The Collector’s Voice: Critical Readings in the Practice of Collecting (2000) raised new issues about the role of collecting in the history of museums. His academic activities also include supervision and examination of PhD-projects in science communication and museums studies at the University of Leicester, Leeds Metropolitan University, Oxford University and Open University.

We are very happy to get this opportunity for close encounters with Ken Arnold and thereby draw on his long experience in research-based exhibition making. If anyone wants to meet him during his Copenhagen sojourn, please contact him at k.arnold@wellcome.ac.uk.

(image credit: LabforCulture, www.labforculture.org)

The aesthetics of disgust

By Biomedicine in museums

Medical museums are often described as temples of horror. Invoking strong feelings of anxiety, fear and disgust, they remind their visitors of the frailty of life, disease and pain, bodily deformations, decay and death.

To make sense of such emotional responses we would need a better understanding of the aesthetics of anxiety, fear and disgust. Katrin Baumgarten at the Royal College of Art in London is one of the pioneers in this field. She is currently investigatng ‘revolting objects’ which exert

a certain ‘macabre attraction’ over the subject, leading to a peculiar absorption in the object and lending a magnetism to this aversion.

Like this electric switch which blurps out some yucky goo when you press it:

Baumgarten claims that the ‘power of disgust’ affects us in every aspect of our lives:

Disgust shocks, entertains and sears itself into memory.

By introducing the aesthetics of disgust as a tool for design, Baumgarten suggests,

one can intensify the user and object relationship through creating paradoxical emotions, going beyond practicality and functionality.

Sounds like a interesting topic for a medical museology phd project.

See also this news item in Wired.

The aesthetics of healthy aging

By Biomedicine in museums

As you may know, Medical Museion takes part in a multidisciplinary Center for Healthy Aging here at the University of Copenhagen. Currently, two of our junior researchers, postdoc Lucy Lyons and phd student Morten Bülow, are doing their research projects within the scope of the Center, and we are about to recruit yet another phd student.

It probably doesn’t come as a surprise to readers of this blog that our contribution to the overall Center activities involves a strong aesthetic component.

For example, we experimented with an aesthetic approach to aging in the Oldetopia exhibition two years ago. Lucy’s joining our group last December was a deliberate attempt to strengthen the aesthetic side. And the current exhibition ‘Healthy Aging: A Life Span Approach’ (see also here), shown in our external exhibition area in the main building of the Faculty of Health Sciences is dominated by Danish photographer Liv Carlé Mortensen’s 15 collages of centennarians (like this one).

I just want to mention this as a background for why the upcoming conference on ‘Aging, Old Age, Memory, Aesthetics’ in Toronto, 25-27 March next year may be quite interesting for us. The conference focuses on how aging is portrayed and experienced in literature and the arts in light of social, political, scientific and cultural contexts:

In using the term aesthetics, we are drawing attention to the arts, aesthetic practices, theories of art, and modes of representation as they pertain to aging and memory. We look forward to presentations that analyze a variety of theoretical, thematic, and disciplinary approaches that remain linked by the consistent placement of old age and aging at the centre of concentrated investigation.

They are also recruiting creative submissions by artists whose work is concerned with the images generated by old age. 300-word proposals should be sent to andrea.charise@utoronto.ca by Friday 1 October 1, 2010.